PiaPia · Articles

Reading for the ones who care.

Honest, research-informed pieces for family caregivers of people living with Parkinson's disease and Lewy body dementia. Written by peers, reviewed with researchers.

Family caregiver community

Finding a Parkinson's Family Caregiver Community: Why Peers Matter

For family caregivers of people with Parkinson's disease, community is the single most protective factor for wellbeing. Here's what a real Parkinson family caregiver community looks like — and how PiaPia builds one.

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Lewy body dementia

Lewy Body Dementia Caregiver Support: You Are Not Alone in the Fluctuations

Caring for someone with Lewy body dementia (LBD) is uniquely hard — the fluctuations, the hallucinations, the misdiagnoses. Here's what LBD family caregivers need, and where to find it.

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Caregiver wellbeing

Caregiver Guilt Is Not a Character Flaw: A Compassionate Guide for Parkinson's & LBD Families

Guilt is the quietest and most common emotion among Parkinson's and Lewy body dementia family caregivers. Here's what psychology research says — and how PiaPia's Summer Camp works with it.

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Support groups

Free Online Support Groups for Parkinson's Caregivers: How to Find One That Actually Fits

A practical guide to finding a free online support group for Parkinson's disease and Lewy body dementia family caregivers — what to look for, what to avoid, and how PiaPia's global meetups work.

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Adult children & young carers

Caring for a Parent With Parkinson's: What Adult Children and Young Carers Need to Know

Caring for a mother or father with Parkinson's disease changes your twenties, thirties, and beyond. Practical and emotional guidance for adult children and young carers — plus a global community that gets it.

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Caregiver wellbeing

Parkinson's Caregiver Burnout: Early Signs and What Helps Before It Breaks You

Caregiver burnout builds quietly in Parkinson's and Lewy body dementia families. Learn the early warning signs, what research says about recovery, and where to find free peer support.

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日本語 · 日本語

パーキンソン病の家族介護者のためのコミュニティ|ひとりで抱えないために

パーキンソン病・レビー小体型認知症の家族介護者のためのグローバルコミュニティ「PiaPia」。無料のオンライン交流会、どの国からでも、どの年代でも参加できます。

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日本語 · 日本語

レビー小体型認知症の家族介護|変動・幻視とどう向き合うか

レビー小体型認知症(DLB・パーキンソン病認知症)の家族介護者に向けて。症状の変動、幻視、睡眠時の行動異常への向き合い方と、同じ立場の仲間とつながれる無料コミュニティ。

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日本語 · 日本語

ヤングケアラーと親のパーキンソン病|同世代に話せないあなたへ

親がパーキンソン病・レビー小体型認知症になった10代〜30代の家族介護者へ。学校・仕事・自分の人生と介護のはざまで揺れる気持ちと、同じ立場の仲間に出会える無料コミュニティ。

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Support groups

Parkinson's Support Groups Online: A Global Option When There's Nothing Near You

Many family caregivers search for a Parkinson's support group near them and find nothing. Here's how online Parkinson's support groups work, and how PiaPia's free global community fills the gap.

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Parkinson's care

Parkinson's Care at Home: A Starting Guide for Families After Diagnosis

Just heard the words "Parkinson's disease" about someone you love? A gentle, practical starting guide to Parkinson's care at home — for spouses, adult children, and young carers.

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