Free Online Support Groups for Parkinson's Caregivers: How to Find One That Actually Fits

Searching for a free online support group for Parkinson's caregivers can be strangely exhausting. Many results are local, clinical, or long since inactive. This guide is what we wish existed when we started.

What a good caregiver support group actually looks like

• Small enough that you can speak — under about 15 people per session.
• Facilitated, so one voice can't take over the whole hour.
• Open to family caregivers at any stage, including bereaved caregivers.
• Free, or genuinely free — no upsell to paid coaching.
• Time zones that respect the fact caregivers live all over the world.

Red flags worth walking away from

• Groups that push supplements, unproven treatments, or miracle protocols.
• Spaces with no moderation, where medical advice flies freely.
• Anything that makes you feel judged for resting.

How PiaPia's meetups work

PiaPia runs free online meetups for family caregivers of people living with Parkinson's disease and Lewy body dementia. Small groups, any country, any age, English with Japanese support. Members receive meetup invitations by email — there is nothing to pay and nothing to prepare.

Once a year we also run the Global Summer Camp, a free 3-week online program on one theme. This year: guilt.

You don't need to be articulate about it. You just need to be in the room.