September 2026Two free online meetups for Parkinson's & Lewy body family caregivers — Sep 18 & Sep 24. Everyone welcome.
PiaPia logo — a red tulip beside a green letter P
Built by caregivers · Guided by research · Connected by hope

You don't have to carry caregiving alone.

PiaPia is a global community for family caregivers of people living with Parkinson's disease and Lewy body dementia — where lived experience and scientific research meet, and where "me too" is the most important thing you can hear.

From any country. At any age. Come meet the best peers of your life.

36 family caregivers have joined PiaPia
Our Story

A community built by family, for family.

"My mother was diagnosed with young-onset Parkinson's disease 13 years ago. I was still a child."

Since then, caregiving has been part of my everyday life. I grew up watching Parkinson's change not only my mother's life, but my entire family's. I learned how to help with daily care, adapt to new challenges, celebrate small victories, and live with uncertainty.

Like many family caregivers, I experienced emotions that were difficult to explain — love, guilt, fear, frustration, loneliness, hope. Sometimes all in the same day.

"Me too."

The most powerful two words a caregiver can hear.

That was the community I wished existed. So we decided to build it. We named it PiaPia — from the word "Peer," reflecting our belief that meaningful support comes from someone walking the same path.

The family map

There are more of us than you think

36

family caregivers from 0 countries have already joined PiaPia

    Any country, any time zone, any age. If your country isn't lit up yet — be the first star.

    Next up · September 2026

    Two free meetups this month.

    Online via Zoom, free to join, for Parkinson's & LBD families. Come to either one — or both.

    PiaPia International Mother Language Day flyer — free online language exchange for Parkinson's and Lewy body dementia families, September 18, 2026.
    September 18

    Language Exchange & Free Talk

    One relaxed hour to meet caregivers from different countries and practice any language you like. No caregiving talk required.

    🇯🇵 22:00 (Tokyo) · 🇺🇸 9:00 AM (NY) · 🇬🇧 2:00 PM (London)

    Register on Zoom →
    September 24

    Accepting Difficult Emotions

    With Astrid, PhD in Psychology (King's College London) — gentle exercises and open conversation about the emotions caregiving brings.

    🇯🇵 7:30 AM (Tokyo) · 🇺🇸 6:30 PM (NY, Sep 23) · 🇬🇧 11:30 PM (London, Sep 23)

    Register on Zoom →
    See full meetup details →
    Inside PiaPia

    This is what a PiaPia meetup actually looks like.

    Caregivers from Japan, the US, the UK, Europe and beyond — showing each other small things from daily life, laughing, and sometimes crying together. No pressure to speak. No pressure to be okay.

    A PiaPia online meetup — nine family caregivers on a video call, each holding up something meaningful from their day.
    PiaPia global caregivers meetup · Online · Any country, any age
    What We Do

    Nurturing the ones who care.

    01 / Community

    Global meet-ups

    Online and in-person gatherings where caregivers openly share experiences, support one another, and build meaningful friendships.

    02 / Peer Matching

    One-on-one connections

    We thoughtfully match caregivers with someone who shares a similar journey — creating space for deep, mutual understanding.

    03 / Programs

    Evidence-informed support

    Programs built with psychology researchers — like our sessions on difficult emotions and self-compassion.

    04 / Knowledge

    Accessible research

    Summaries of Parkinson's and Lewy body dementia research, practical caregiving tips, and resources for caregiver wellbeing.

    Why PiaPia

    The world's most welcoming community for family caregivers.

    Warm hands holding a ceramic cup in morning light
    01
    Lived experience

    Built by caregivers

    Everything we create begins with real caregiving. We know what it feels like because we've lived it — every single day.

    02
    Evidence-based

    Guided by research

    Our programs are informed by psychology, neuroscience, and caregiving science. Support works best when evidence meets lived experience.

    03
    Global

    Across every border

    Any country, any age. Our community welcomes caregivers from every culture and generation.

    04
    Human first

    Connection before advice

    Sometimes the most helpful thing isn't advice. It's hearing someone say, quietly, "me too."

    In the press

    PiaPia featured in The Carer Times (Japan)

    Our founder Aoi wrote the Young Carer's column in The Carer Times Vol. 07 — a Japanese newspaper dedicated to unpaid family carers. She writes about starting care at age eight, and about building PiaPia so that caregivers around the world can feel they are not alone.

    Front page of The Carer Times Vol. 07, a Japanese newspaper for family carers.
    The Carer Times Vol. 07 — front page
    The Young Carer's column by Aoi, founder of PiaPia, in The Carer Times Vol. 07.
    Young Carer's column — by Aoi, founder of PiaPia
    Our Promise

    PiaPia is not therapy. It is a place where caregivers find understanding, connection, knowledge, and hope — through people who genuinely know what caregiving feels like.

    Led by family caregivers. Supported by collaborators in psychology, neuroscience, healthcare, and Parkinson's research.

    36
    Family caregivers already here

    Come meet the best peers of your life.

    From any country. At any age. Wherever you are on the caregiving path, there is a place for you here.

    Become a Member

    Once you sign up, we'll email you meetup info and invites — straight to your inbox.

    Free · Global · Welcoming every caregiver